Patient stories
You are not alone in your IgG4-RD journey. We encourage you to share your story. Be heard. And find comfort and belonging as you listen to other patient stories.
Patient stories
You are not alone in your IgG4-RD journey. We encourage you to share your story. Be heard. And find comfort and belonging as you listen to other patient stories.
Stories from patients like you
Carl's story
Headaches, lost smell, fading vision: from brain tumor scare to IgG4-RD diagnosis treated with rituximab.
Cecilia's story
From jaundice, rapid weight loss, and "tumor" scare to success with stents, steroids, then B cell depletion.
Fred's story
Obstructive jaundice sparked an initial diagnosis of pancreatic cancer, and the need for Whipple surgery. After IgG4-RD diagnosis and rituximab his course cleared.
William's story
Decades of sinus, eye, and salivary swelling and a misdiagnosis of Sjögren's disease. William made history as the very first patient ever to receive B cell therapy.
Serkis's Story
Sudden, searing back pain led to retroperitoneal fibrosis; years of ureteral stents ended when IgG4-RD responded to B cell therapy.
Bob's story
Decades of “allergy” eye swelling ended with IgG4-RD diagnosis when rituximab, and now inebilizumab worked.
Andy's story
A CT scan following a bike accident sparked a 15 month long lung cancer scare but biopsies proved IgG4-RD, then prednisone and B cell therapy helped.
Barbara's story
Sudden hearing loss and imbalance from meningeal disease until intrathecal rituximab restored her life.
Henry's Story
Mysterious signs over years of dysfunction in lungs, pancreas, and lacrimal glands revealed to be IgG4-RD.
John's story
A “kidney stone” attack revealed retroperitoneal fibrosis; stents, rituximab, then ureterolysis ultimately restored normal life.
