Patient stories

IgG4ward! BayJAM: Hope in action

See Hope in Action at IgG4ward! BayJAM, where patients, caregivers, clinicians, researchers, and advocates gathered at Stanford University for education, connection, and community.

IgG4ward! EuroJAM Session 4: Understanding the Eye and Neurological Manifestations of IgG4-related disease

Learn how IgG4-related disease can affect the eyes and nervous system through expert presentations by Comfort Dawodu and Dr. Claire Rice. This educational resource explores symptoms, diagnosis, treatment, and the importance of early recognition and multidisciplinary care.

IgG4ward! EuroJAM Session 2: Challenges in the journey to diagnosis with Dr. Emma Culver

Why is IgG4-related disease so difficult to diagnose? In Session 2 of IgG4ward! EuroJAM, Dr. Emma Culver explores the factors that contribute to diagnostic delays and discusses how awareness, education, and collaboration can help improve the diagnostic journey for patients and families.

IgG4ward! EuroJAM Session 1: The history and evolution of IgG4-related disease

The inaugural IgG4ward! EuroJAM opened with a powerful reminder that no one should face IgG4-related disease alone. In Session 1, Dr. John Stone explores the history and evolution of IgG4-RD, tracing the discoveries that led to recognition of the disease and continue to shape research and patient care today.

IgG4ward! EuroJAM: Hope in action

Hope was a theme throughout the IgG4ward! EuroJAM - but not as wishful thinking. Patients, caregivers, researchers, physicians and industry partners came together to share knowledge, build connections and move the conversation around IgG4-related disease forward. Here's a look back at the event and what's coming next.

While rituximab is often seen as a “wonder drug” for IgG4-RD patients, Dr. Michael Bamber, who lives with IgG4-RD, shared a sobering story about his recent episode of sepsis. He was left to wonder, “Could rituximab somehow have played a role?”